Friday, November 24, 2006

Pretending to be normal

Since my diagnosis with High Functioning Autism (HFA)/Asperger's Syndrome (AS) at age 57, I have been reading a lot about autism and aspergers. What I find most interesting has been individual stories of how they have/are coping with the not being normal "problem". I have been most intregued by Temple Grandin and Lianne Holliday Willey.

In Emergence and Thinking in Pictures, Temple talks about the difficulties fitting in socially with the "normals" when it was the "normals" who were really the ones displaying poor social skills. She found a physical way to meet her need for close contact but could not stand to have other people touch her or be real close. She created a "hugging" machine from a cattle chute.

Lianne discovered her "aspieness" when her daughter was diagnosed with Asperger's Syndrome. She felt like she had arrived home. Now she could "joyfully talk to herself" without feeling like a freak. Her daughters frequently do have to remind her not to talk to herself in public or around others. This is just one example mentioned in her book, Pretending to be Normal.

I read an interview with the authors of a book call Autism/Asperger's and Sexuallity. They were a married couple who both had Asperger's. When asked what the most important thing for individuals with Autism/Asperger's to do, one of them responded that looking and being as normal as possible was the most important thing for an aspie to do. This comment was made several times during the interview. This really did disturb me. If I could do that, I would not have problems with social settings, and basically AS does not exist.

I have tried to "appear as normal as possible" all my life. Did I succeed? Not really, especially after I had been in a situation (friendship, job, group, church, etc.) for a while. In fact, it became harder and harder after 45. Most of the time the problem developed around understanding the "rules", especially the "obvious", "everybody knows that", and those crazy hidden rules. The best news I have received in 30 years was the diagnosis of Asperger's Syndrome. I felt like Lianne--I had finally found why I was like I was.

Someone asked me last Summer what it was like to receive the diagnosis at such a late time in life. My response was, "It is much better to have a 'disability' than to be a jerk".

What I am finding out about this who "pretending to be normal" dilema is simple. You have to know who you are before you can "act normal". I have come to the conclusion that I am far much happier just being me, with all the baggage that brings. I have STOPPED pretending to be normal. You can't mimmic something that does not exist. I have realized that "normal" is the creation of the testers and those who would like to dominate and subject me to their supposed superiority.

I am in good company. There are many, many creative geniuses whose recorded behavior fits the HFA/AS criteria. This is a very short list: Thomas Jefferson, Thomas Edison, Mozart, Orson Wells, Albert Einstein, Charles Darwin, Glenn Gould, Oscar Levant, Carl Sagan, and Bill Gates.

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22 Comments:

Blogger Elizebeth Pettway-Anderson said...

In reading this I can pretty much feel where you are coming from. I did not know that my daughter had autism until she was in her senior year of high school. Her counselor called and asked me to come in to talk to her. All those years I had no clue of what was wrong with her. I knew she was different but could not put my hand on it. After finding out this information, I enrolled into school and took a class on children with special needs that addressed all aspects of disabilities. This class helped me to understand my daughter and thus sparked my desires and goal to become a special ed teacher

5:24 PM  
Blogger Derrick Delton said...

I agree with article that we aren't always sure of what is 'normal'. This idea of normalcy not only relates to students and adults that have been diagnosed with HFA/Aspergers. On a more personal account what is normal on the west coast in regards to race is a lot different than what is accepted in the south. My family and I went to South Carolina 3 years ago to visit my parents. With my wife being Mexican and me being Black and my 3 children being bi-racial, we had the opportunity to see how interracial relationships were viewed on the other side of the country. It was not a friendly environment. In regards to our students that have been identified I feel that it is important to provide positive role models and examples to help our students.

5:34 PM  
Blogger kimberlynn said...

I think most people spend too much of their youths "pretending to be normal." It may be more severe for those on the Autism Spectrum, but all of us I think have felt like we were at some time in our life pretending to be something that we are not. However, so many start our youths with a strong desire to fit in and not be "weird." Only later do we begin to realize the beauty of being unique, different, interesting, and special. At this point, we begin to gain confidence in our differences and celebrate those differences without caring about the world. Unfortunately, not all people reach this level of confidence. Congratulations on reaching that!

5:36 PM  
Blogger rogerg said...

I believe that any "diagnosis" is and can be a traumatic expericence for anyone. SM

Normal? by whose defination? We are not to judge the whole duty of man is to walk justly and have mercy. GB

5:47 PM  
Blogger Tylerc said...

There was a great VP that I once worked with that was working on a project entitled " The whole world is a little SDC" and I believe that she is absolutely right. There really is no such thing as normal. There are traits that many people share and as a result those traits are considered to be the "normal" traits. Everyone has those little quirks that make them unique and in the end it is the quirks and non "normal" traits that are the most memorable ones people recall about people.

5:50 PM  
Blogger D.Watts said...

I agree with what is being said about 'normal.' I believe we're all SPED, just in different ways! Agreeably, kids want to 'fit-in;' as we age, we just want to feel comfortable in our own skin...whatever that is.

9:55 PM  
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